Life # 36 - Chloe Saxby

This month, the team at Gateway Motor Group would like to do something kind for a little girl going through a difficult time.

Chloe Saxby was a happy, healthy 4 year old girl…then overnight she lost use of her legs. After eight agonising months of testing, Chloe was diagnosed with Vanishing White Matter Disease (VWM), an extremely rare, degenerative and terminal brain disease that affects mostly children.  With VWM, a bump to the head, a temperature, a cold or even a fright could kill Chloe.

Chloe is now ten and this cruel disease has already robbed her of the ability to walk - next it will paralyse her body to the point that she won’t be able to hold her head up, talk, eat, see, or hear.  Chloe will experience a lot of pain and suffering and die at a very early age if the cure is not found in time, as life expectancy is five to ten years from onset. 

There is hope  - promising research is underway to stop the disease, but it’s hampered by a severe lack of funding. In the past 2 and a half years, Chloe’s family have raised a staggering $1.3 million towards research into the disease, and they continue to devote their lives to fundraising.

We think what they are doing is incredible. So while they are busy doing their amazing fundraising to help their daughter, and other children affected by this disease, we want to do something kind for them.

Chloe’s parents have been wanting to take her away on a family holiday, but every spare penny they have goes into their fundraising pot. They were given a travel voucher, which they are using to fund flights to the Gold Coast and some accommodation. But they still need to fund the rest of the holiday. We would love to help!

 

What We Need

1. Donations: We need to raise $700 to pay for the Saxby’s accommodation. If we raise more than is needed, we will also be paying for a dolphin experience for Chloe while she is there. If you would like to make a donation, or if you have an idea for how the team can raise funds, please click the link below and let us know.

Thank you so much for your help!