Last month, the team at Gateway Motor Group wanted to do something kind for a 10 year old girl from Wollongong called Chloe, who has been having a tough time.
Chloe Saxby was a happy, healthy 4 year old girl…then overnight she lost use of her legs. After eight agonising months of testing, Chloe was diagnosed with Vanishing White Matter Disease (VWM), an extremely rare, degenerative and terminal brain disease that affects mostly children. With VWM, a bump to the head, a temperature, a cold or even a fright could kill Chloe.
Chloe is now ten and this cruel disease has already robbed her of the ability to walk - next it will paralyse her body to the point that she won’t be able to hold her head up, talk, eat, see, or hear. Chloe will experience a lot of pain and suffering and die at a very early age if the cure is not found in time, as life expectancy is five to ten years from onset.
Chloe’s parents had been wanting to take her away on a family holiday, but every spare penny they have goes into their fundraising pot to help find a cure. They were given a travel voucher, which they were using to fund flights to the Gold Coast and some accommodation. But they still needed to fund the rest of the holiday...which is where the team at Gateway stepped in!
As well as individual staff donation of almost $400 to help the family, we have managed to arrange something incredibly special for Chloe. When the team at Sea World heard about what we were trying to do for Chloe and her family, they got in touch and offered to make Chloe's trip to their resort extra special. As well as donating a $400 room credit towards meals and other expenses, they also organised for Chloe to have a private dolphin experience, a meet and greet with her favourite characters, to be part of the Seal Show - so many wonderful surprises that have absolutely blown her away. Thank you so much to Mitchell, Melinda and the team at Sea World Australia for going above and beyond what we could ever have hoped for.
Thank you also to everyone at Gateway Motor Group for their amazing support.